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Congenital Syndromes: A-E

Editor:RP

Adrenogenital - Ataxia-telangiectasia
B
C
D
E


Adrenogenital - Ataxia-telangiectasia:

Adrenogenital syndrome

Inability to synthesize hydrocortisone and possibly aldosterone; virilization of  female

All need hydrocortisone even if not salt losing: check electrolytes

 

Albers-Schonberg disease (marble bone disease or osteopetrosis)

Brittle bones. pathologic fractures

Anemia from marrow sclerosis: hepatosplenomegaly: care in positioning and restraint. limited joint mobility

 

Albright-Butler syndrome

Renal tubular acidosis: hypokalemia; renal calculi

Correct electrolytes to within normal limits-, renal impairment

 

Albright's osteodystrophy (pseudohypoparathyroidism)

Ectopic bone formation, mental retardation

Hypocalcemia possible ECG conduction defects, neuromuscular problems, convulsions

 

Alport's syndrome

Progressive renal failure: nerve deafness: ocular abnormalities

Renal failure in second to third decade: care with renally excreted drugs

 

Alstrom syndrome

Obesity, blindness by 7 years: hearing loss; diabetes after puberty, glomerulosclerosis

Renal impairment: manaocinent of diabetes and obesity

 

Amyotonia congenita (infantile muscular atrophy)

Anterior horn cell degeneration

Sensitive to thiopental (reduced muscle mass) and respiratory depressants~ care with muscle relaxants

 

Amyotropic lateral sclerosis

Degeneration of motor neurons

Avoid succinylcholine: possible potassium release and cardiac arrest; minimal thiopental and curare; avoid respiratory depressants

 

Analbuminemia

Almost absent albumin 4100 mg/dL

Very sensitive to protein-bound drugs

 

Andersen's disease (glycogen storage disease type IV)

Debranching enzyme deficiency

Possibility of hypoglycemia during anesthesia

 

Apert's syndrome (acrocephalosyndactyly)

Craniosynostosis

Syndactyly of hands; difficult intubation: possibly raised intracranial pressure. associated congenital heart disease

 

Arthrogryposis multiplex

Multiple congenital contractures-, stiffness of joints associated with hypoplasia of attached muscles

Ten percent have congenital heart disease: possible airway problem

 

Asplenia syndrome

Absent spleen, bilateral visceral right-sidedness

Very complex cardiovascular anomalies, present with cyanosis and heart failure

 

Ataxia-telangiectasia

Cerebellar ataxia; skin and conjunctival telangiectasia; decreased serum IgA and IgE; 10% develop reticuloendothelial malignancy

Defective immunity-recurrent chest and sinus infections; bronchiectasis; aseptic techniques

 

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B:

Beckwith-Wiedman syndrome (Exophthalmos, macroglossia, gigantism)

Birth weight >4000 g; macroglossia and exomphalos; polycythemia visceromegaly in infants

In older children, associated with hepatocellular cancer; persistent severe neonatal hypoglycemia; airway problems

 

Blackfan-Diamond anemia (syndrome)

Congenital idiopathic red cell aplasia

Liver and spleen enlarged; hypersplenism. thrombocytopenia; steroid therapy required

 

Bowen's syndrome (cerebrohepatorenal syndrome)

Hypotonia, hepatomegaly, and neonatal jaundice; polycystic kidneys; associated congenital heart disease

Hypoprothrombinemia; care with renally excreted drugs and muscle relaxants

 

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C:

Carpenter's syndrome

Obesity; cranial synostosis; associated congenital heart disease; mental retardation; peculiar facies; syndactyly of fingers and toes

Hypoplastic mandible; possibly difficult intubation

 

Central core disease

Muscular dystrophy

See Amyotonia congenita

 

CHARGE association

Coloboma, Heart disease, Atresia choanae, Retarded growth, Genital anomalies, and Ear anomalies. Tetralogy of fallot, VSD, ASD, ASVD; micrognathia

Respiratory distress (choanal atresia); difficult airway; possible difficult intubation. Congenital heart disease

 

Chediak-Higashi syndrome

Partial albinism immunodeficiency; hepatosplenomegaly

Steroid therapy; recurrent chest infection; thrombocytopenia-may require platelets

 

Cherubism

Tumorous lesion of mandibles and maxillae with intraoral masses; may cause respiratory distress

Intubation may be extremely difficult; may require tracheostomy for acute respiratory distress, profuse bleeding at surgery

 

Chotzen's syndrome

Craniosynostosis

May be difficult intubation: associated renal anomalies and possible impaired renal excretion of drugs

 

Christ-Siemens Toumine syndrome (anhidrotic ectodermal dysplasia)

Absent sweating, heat intolerance

Cannot control temperature by sweating: persistent upper respiratory and chest infection caused by poor mucus formation

 

Chronic granulomatous disease

Inherited disorder of leukocyte function: recurrent infections with nonpathogenic  organisms

Hepatomegaly in 95%~ poor pulmonary function; avoid infection-strict asepsis

 

Collagen disease: dermatomyositis, rheumatoid arthritis, systemic lupus erythematosus. polyarteritis nodosa

Systemic connective diseases frequently treated with steroids; osteoporosis and  fatty infiltration of muscle: variable systemic involvement

Often have pulmonary infiltration or fibrosis. may have temporomandibular or cricoarytenoid ar1hritis causing airway and intubation difficulties: anemia common; risk of fat embolism after osteotomy, fracture. or minor trauma; renal involvement common, potential Addisonian crises

 

Conrad's syndrome

Chondrodystrophy with contractures. saddle nose, mental retardation; associated congenital heart disease and renal anomalies

Problems are those of associated renal and cardiac disease

 

Cretinism (congenital hypothyroidism)

Absent thyroid tissue or defective synthesis thyroxine and goiter

Airway problems-large tongue, goiter; respiratory center very sensitive to depressants; carbon dioxide retention common; hypoglycemia, hyponatremia, hypotension; low cardiac output: transfusion poorly tolerated

 

Cri du chat syndrome (cat's cry syndrome)

Chromosome 5-P abnormal, abnormal  cry, microcephaly micrognathia; congenital heart disease; hypertelorism exophthalmos; catlike cry

Airway problems-stridor, laryngomalacia; possibly difficult intubation

 

Crouzon's disease

Exophthalmos, hypertelorism; craniosynostosis, hypoplastic mandible

Possibly difficult intubation. severe blood loss with craniofacial operation

 

Cutis laxa

Elastic fiber degeneration, pendulous skin, frequent hernias; emphysema and cor pulmonale; arterial fragility

Pulmonary infection, emphysema, and cor pulmonale; poor tissues-IV cannula difficult to maintain; excess of soft tissues around larynx may lead to respiratory obstruction

 

Cystic fibrosis

Multisystem involvement

~'/~ imbalance resulting in hypoxemia; bronchial secretions; recurrent infection; cor pulmonale; liver abnormalities; malabsorption; vitamin K deficiency; coagulopathy

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D:

DiGeorge syndrome (third and fourth arch syndrome)

Absent thymus and parathyroid glands; immune deficiency; susceptibility to fungal and viral infections; treated by fetal thymic transplants

Recurrent chest infections; hypoparathyroidism; low calcium, and tetany; stridor; aortic arch abnormalities and reduced cardiac output; donor blood must be irradiated with 3000 rad to prevent graft-versus-host reaction

 

Down syndrome (mongolism)

Mental retardation; microcephaly; small nasopharynx: hypotonia: 60% have congenital heart disease: duodenal atresia in some; atlantoaxial instability

Difficult airway-large tongue: risk of airway obstruction; problems of cardiac anomalies; risk of cervical cord injury

 

Duchenne type muscular dystrophy

Muscular dystrophy with frequent cardiac muscle involvement; usually die in second decade

As for amyotonia congenita plus cardiac involvement; minimal drug dosage: avoid respiratory depressants, muscle relaxants; postoperative ventilation may be required; risk of malignant hypertension'? Succinylcholine contraindication'?

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E:

Edward's syndrome (trisomy 18 [E])

Congenital heart disease in 95%: micrognathia in 80%; renal malformations 50% to 80%; usually die in infancy

Possible difficult intubation; care with renally excreted drugs

 

Ehlers-Danlos syndrome (cutis hyperelastica)

Collagen abnormality with hyperelasticity and fragile tissues; dissecting aneurysm of' aorta: fragility of other blood vessels~ bleeding diathesis

Cardiovascular system: spontaneous rupture of vessels: angiogram 1% mortality: ECG conduction abnormalities: IV cannula difficult to maintain hematoma: poor tissues and clotting defect lead to hemorrhage, especially of GI tract; spontaneous pneumothorax

 

Ellis-van Creveld syndrome (chondroectodermal dysplasia)

Ectodermal defects. skeletal anomalies: 50%, have congenital heart disease

Chest wall anomalies lead to poor lung function: may have abnormal maxilla and upper lip, hepatosplenomegaly

 

Epidermolysis bullosa

Erosions and blisters from minor skin trauma

Airway-oral lesions. adhesion 01' tongue; ketamine is recommended or use Small oral tube to avoid laryngeal trauma; avoid skin trauma from tapes; history of steroid therapy: check for porphyria (similar skin lesions)

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